Lila May Schow was a little girl with big dreams, a great attitude, and a true love of life. She had a beautiful, loving family, wonderful friends, and a pair of chihuahuas that she adored. Little Lila May also had Stage 4 Neuroblastoma cancer. When Lila May was just two-years-old, she received her first diagnosis of the disease. Lila May's story is not one of tragedy, but one of triumph, happiness, and the tremendous fortitude of a little girl's positive outlook when facing incredible odds.
A few years passed where the youngster and her family sought out every available treatment and specialist they could find. Upon learning that the little girl's body was not strong enough to defeat the cancer, Lila May's family set out on a mission that would prove to be the catalyst for many blessings in their loved one's life.
On Lila's 5th birthday, her dreams of a princess party with hundreds of people in attendance came true thanks to an incredibly supportive community in Hood River, Oregon and many family and friends who came together to help the little one. Her family also took her on the Hawaiian vacation that she had yearned about for years, and her town declared her their princess! But there was one dream she had left...
Lila dreamed of dancing on stage alongside Luke Bryan.
"She's just always loved him, whenever she hears his songs come on, she starts dancing," her mother Heidi Hall told People. "Her favorite song of all time is 'That's My Kind of Night'. If she could be on stage with him while he sings that song, that would just make her whole entire year."
After hearing about this little girl's biggest wish, Luke leaped at the opportunity to bring more bright days to her and make a dream come true. A close family friend, Jenny Brown-Lorenzen spoke with the publication, "Luke personally called Lila and talked to her and her family. They were so very impressed."
That wasn't the end of the line for the country star, though. Luke sent Lila a personalized video message, VIP tickets to a concert for her entire family, and even arranged to bring her on stage so that she could dance and sing her favorite song with him.
Tragically, Lila May Schow passed away on September 12, 2015, just days before she would have met Luke.
Although she was faced with unsurmountable odds, this little shining star never gave up hope or stopped dreaming and was a beautiful reminder of why we should all value each and every day that we are blessed with.
We are truly thankful that Luke was able to reach out and touch Lila May's heart and make one of her dreams come true.
Lila's family established a fun-run event in their local community several years ago to raise funds for her treatments and they are pleased to continue the tradition of "Lila May's Tutu Trot" in 2016 with all proceeds being donated to Solving Kids' Cancer - a nonprofit organization dedicated to furthering childhood cancer research.
For more information on the 3rd Annual Lila May's Tutu Trot on Saturday May 7th, 2016, please visit their website.
We have included a touching video of little Lila May dancing and singing to Disney's Frozen below that is sure to warm your heart!
This is how we wait for appointments at Sloan Kettering :)Posted by Lila May on Thursday, January 22, 2015
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