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At the age of 55, Celine Dion is experiencing a loss of muscle control while confronting stiff-person syndrome (SPS), a rare neurological disorder, according to information shared by her sister.
SPS is “a rare autoimmune neurological disorder that most commonly causes muscle stiffness and painful spasms that come and go and can worsen over time,” according to Johns Hopkins Medicine.
“She doesn’t have control over her muscles,” Claudette Dion, Celine’s sister, told Canadian outlet 7 Jours, via translation from French. “What breaks my heart is that she’s always been disciplined. She’s always worked hard. Our mother always told her, ‘You’re going to do it well, you’re going to do it properly.'”
Claudette also noted, “It’s true that in both our dreams and hers, the goal is to return to the stage. In what capacity? I don’t know.”
The recent update on the Canadian star’s condition arrives a year after she disclosed her diagnosis and just weeks following her first public appearance in almost four years. In late October, the singer was seen at the T-Mobile Arena in Las Vegas, joyfully cheering on the Montreal Canadiens during their game against the Vegas Golden Knights with 22-year-old son and 13-year-old twins.
“Sometimes causing difficulties when I walk,” she continued, “and not allowing me to use my vocal cords to sing the way I’m used to.”
Dion first opened up about her diagnosis back in December 2022, saying she had to reschedule tour dates that had already been postponed due to the COVID-19 pandemic.
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“I’m so sorry to disappoint all of you once again,” Dion wrote in an Instagram post, announcing the news. “I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%. It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again.”
“I want you all to know, I’m not giving up,” she added, “and I can’t wait to see you again!”
Our heartfelt best wishes go out to Dion and her family during this challenging time. We hope for her recovery and good health!